Dystonia is the name for uncontrolled and sometimes painful muscle movements (spasms). It's usually a lifelong problem, but treatment can help relieve the symptoms.
Dystonia can affect your whole body or just 1 part. It can start at any age.
Symptoms of dystonia include:
The symptoms may be continuous or come and go. They may be triggered by things like stress or certain activities.
Dystonia is uncommon, but it's best to get the symptoms checked out.
If your GP thinks you could have dystonia, they may refer you to a specialist called a neurologist for tests.
To diagnose dystonia, a neurologist may:
If you're diagnosed with dystonia, your neurologist can tell you which type you have and what your treatment options are.
Treatment can help relieve the symptoms of dystonia. The best option for you depends on the type of dystonia you have.
The main treatments for dystonia are:
Deep brain stimulation is the main type of surgery for dystonia. It may be offered on the NHS if other treatments don't help.
It involves inserting a small device, similar to a pacemaker, under the skin of your chest or tummy.
The device sends electrical signals along wires placed in the part of the brain that controls movement.
The Dystonia Society has more on deep brain stimulation.
Dystonia affects people in different ways. The severity of symptoms can vary from one day to another.
It can have a big effect on your life and make daily activities painful and difficult.
It's usually a lifelong condition. It may get worse for a few years but then remain steady. Occasionally, it can improve over time.
You can get support and advice about living with dystonia from The Dystonia Society.
Dystonia is thought to be caused by a problem with the part of the brain that controls movement.
Often the cause is unknown.
Sometimes it can be due to:
Page last reviewed: Tue Mar 2021 Next review due: Tue Mar 2021